Tales From First Grade Part 1

Boys in 2011imageThis is part 1 in a series highlighting communications with a teacher my twins had for first grade (5 years ago). I hope to illustrate what can happen when a teacher takes the time to understand (and appreciate) their students. It also illustrates some of the unique issues associated with parenting twins on the autism spectrum. They attend a private school for kids with learning differences with a class ration of about 8:1.
These emails have been edited to remove names & extraneous information.

Part 1 – We decided to try Zoloft for significant mood swings in hopes of “balancing” his emotions.

ME
Subject: Happy Monday!

Quick update – R started on the zoloft. Not on the full dose yet and
no side effects that I can tell. Too soon to tell if it will work either.
I take that back – if he seems sleepy during literacy it’s from the
zoloft. He knows he needs to be good or no book fair (which mrs C had
indicated was during library times). I’ll be there working today. Woo
hoo!
I broke down and got them the national geographic sea monsters DVD .
R watched it 5 times yesterday and has already asked to watch it
today.
C hurt his butt somehow last night and started howling about how he
needed to go to a butt doctor. He says it feels good this morning

Teacher
Subject: RE: Happy Monday

I’ll let you know how he does today. He came in happy mumbling about sea
monsters. They get to go to the book fair today, tomorrow during lit and
then we’ll go the following day to purchase wish list items. So, they’ll
be “book faired” out! Better send a debit card.

Hopefully C’s butt will be fine today. He cracks me up!

Later that day from the Teacher:

R. had a better morning. Seemed much more willing to stick with the plan…we’ll see how that goes when the book fair isn’t hanging over his head. Also with him in math we’re still working on some concepts and review skills to get him ready for Saxon. His one-one counting is still pretty sloppy, so we’re working on that on more/less, etc. Just wanted to let you know that he’s not working on what 1st grade news says…yet…but we’re hoping to move there soon!

R. has a wad of playdoh stuck to his shoe right now that he’s tracking everywhere. He’s trying to shake it off like it’s chasing him. C keeps calling me his “beautiful Cinderella” b/c he wants to look at sea monsters on my computer. He really has figured out how to “work it” at a young age! See you at the book fair!

No Labels Required!

Last year my youngest was in the public school system, struggling to keep up with the common core standards. Her processing issues made it difficult for her to grasp the vocabulary that accompanied the entire math program. She worked hard and TRIED to keep up, but compared to most of her classmates, she was behind- academically and physically. The school she was at did try and give her extra help (small math groups a few times a week) but with 29 first graders and 1 teacher, there was only so much they could do. She had been diagnosed with auditory processing disorder prior to that year but the district doesn’t recognize APD as a disability hence, no IEP. She was one of those who kind of faded through because she wasn’t a behavioral issue and her performance, while in the lower tier wasn’t sending any major red flags.
At the end of last year, we had her go through a psych, medical and speech evaluation to determine a diagnosis. Was it just the APD or was there something else going on? I mentioned that at school she was not a behavioral problem, however when she was at home, she WAS capable of having hour long meltdowns. Her twin brothers had an autism diagnosis from the time they were 3 years old so we knew what their autism looked like. She didn’t really match up – she was fairly social, she could carry on a conversation etc. After a month of testing (they added additional tests because she was so borderline), she was diagnosed with ASD, it would have been Aspergers under the old DSM as well as receptive/expressive/ pragmatic language deficits, dyspraxia and anxiety.
We had to decide what to do for the next school year – send her to a private school or keep her in the public school system?  We were concerned about her having to “wear” the ASD label in order to get an IEP and how that might affect her socially. Most concerning of all, was her processing defecits and being able to succeed with the common core program. Give her a sheet of addition/subtraction and she can bust right through it. Give her a sheet with the same equations, but in a word problem, and she gets overwhelmed with the language part of it. “Addend, Sum of, difference between” was like putting the cart before the horse!

We decided to send her to the same private school her brothers have attended since Kindergarten – a school for kids with learning differences (ADHD, dyslexia, autism etc). The school has class sizes of 5-8 kids and they tailor learning to how the child learns best!

2nd - 8th grade cheerleaders

2nd – 8th grade cheerleaders

She is in 2nd grade at this school and is loving it! Instead of being in the lower tier of students in her public school, she is a rock star here and is doing things she would never have been able to in the public school. This is her cheering at her 1st basketball game. She has the “ASD” label now but here, unlike her old school she doesn’t need to be identified by her label. She is just herself!

People you find in pediatric therapy waiting rooms

imageIf you have spent time in Pediatric therapy waiting rooms getting services for your kids with Autism, you have inadvertently come across these people at one time or another. In fact, you may very well be one or a combo of these people. Personally, I have been been several of these at one time or another (4, 5 and 9 in particular). I drafted this in my head this past summer after spending several hours a day in waiting rooms!

1. The TMI’er-  They ensure that everyone knows what is up with their child. Before you part ways, you will have a strong understanding of their child’s current bowel issues ( how often they go, what it looks like etc), food preferences and their child’s current diagnoses.

2. The Newb – They are new to this scene after having their child age out of in-home early intervention programs. They often have the “deer in headlights” look in their eyes. Once they have been there awhile, they will morph into another type.

3. The Acronymer – These people speak in abbreviations “OT, SLP, PT, ABA, COMT etc.” They sometimes use 2-3 Acronyms in one sentence acronyms and are oblivious to the glazed look that comes into your eyes midway into the conversation. They have read a lot books and remain under the illusion that you have too. It is best to just nod your head as if in agreement and avoid clarification.

4.  The Been There/Done that –  They are loosely related to the Acronymer but will carry an air of superiority. They like to think that they are the Autismest person of all time and maybe they are – if only you could understand what they are talking about. They will often strike up a conversation with the Newb so they can impart their wisdom.

5.The I Cannot Lose Controller –  These are the ones that bring all their kids and keep them on a short leash in the event they wreak havoc on the waiting room. They will sometimes look with disdain at the kids who ARE wreaking havoc in the waiting room and will not allow their kids to join them. This will result in their kids getting upset and causing a scene – this will generally elicit a eye roll of “Do you see what I have to put up with?”.

6. The Groomed Professional-  they often look a little out of place in the waiting room amongst the jeans and Ugg boots. They are not the regular chauffeur for their child but are usually happy to be there and see what their child does. They are even happier when it is time for them to go back to work to make the money that pays for the therapies.

7. The Earth Mother – They know all staff, parents and kids and will address them all individually, by name, and remember what was going on with them the week before. Their own child is ignored and is likely to go tip the bookcase over to get attention.

8. The Drama King/Queen– Similar to the Been There/Done That with an exception, they make a grand entrance that no one can ignore. They will yell at their kids without hesitation and yell at yours if they see fit. You always know what is going on with them because they are LOUD in relating their tales of woe.

9. The Nobody Talk To Me– This person is the one sitting in the corner with a book or electronic device. They rarely make eye contact and just want to be left alone. Do not try and make small talk. Seriously, just leave them alone.

10. The Others This includes babysitters, nannies and grandparents. They are hoping that their charge avoids a meltdown and will do whatever it takes to keep them happy. They sometimes have siblings with them who wreak havoc in the waiting room and they will attempt to maintain control but the kids don’t listen to them, so it’s a half-hearted attempt. They clean up the mess inflicted during the scheduled therapy time prior to leaving.

Is anyone missing?